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Addressing genetic discrimination and its stigmatizing effects through human rights.

Abby Rud1, Erin Porter1, Yann Joly1

  • 1McGill University, Quebec, Canada.

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Summary

Genetic discrimination (GD) disproportionately affects marginalized groups, leading to health disparities. A human rights approach is proposed to address systemic inequities and combat the stigma associated with genetic testing and discrimination.

Keywords:
Genetic discriminationHuman rightsInequitiesIntersectionalityStigma

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Area of Science:

  • Genetics
  • Public Health
  • Human Rights Law

Background:

  • Genetic stigma and discrimination (GD) deter individuals from genetic testing, exacerbating health disparities in marginalized communities.
  • Existing genetic non-discrimination laws often fail to address systemic inequities driving disparate GD rates.
  • Previous discrimination experiences amplify genetic stigma within specific demographics.

Purpose of the Study:

  • To analyze the limitations of current genetic non-discrimination laws.
  • To propose a human rights framework for addressing genetic discrimination.
  • To explore how genetic discrimination intersects with other forms of marginalization.

Main Methods:

  • Literature review of genetic non-discrimination laws and human rights principles.
  • Analysis of systemic factors contributing to genetic discrimination.
  • Conceptual framework development integrating human rights and genetic equity.

Main Results:

  • Current laws often treat genetic discrimination as isolated incidents, overlooking systemic issues.
  • A human rights approach offers a more comprehensive strategy to combat genetic stigma.
  • Integrating genetic discrimination with broader human rights concerns can address intersecting marginalization.

Conclusions:

  • A human rights framework is essential for a holistic approach to genetic discrimination.
  • Addressing systemic inequities is crucial for mitigating disparate health outcomes.
  • Policy and legal frameworks must evolve to encompass the intersectional nature of genetic stigma.