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Updated: Jan 13, 2026
Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Harnessing a neonatal encephalopathy registry for regional quality improvement efforts
Fatima M Al-Sammak1, Joshua C Euteneuer2, Nick Townley3
1Department of Pediatrics, University of Nebraska Medical Center, Omaha, NE, USA.
Objective:
Improve regional clinical care for infants with neonatal encephalopathy presumed to be due to hypoxic-ischemic encephalopathy (HIE) by developing a clinical data registry.
Study Design:
We developed a regional multicenter registry of newborns at risk for HIE and leveraged data collected within the registry to design and monitor biannually quality improvement metrics in a collaborative effort among site investigators.
Result:
Over the 3 years since beginning our improvement efforts, we have demonstrated positive trends in all three initial metrics decided on by our investigators: increasing the cord blood gas acquisition in high-risk deliveries (median 74-87%); increasing neurological exam and encephalopathy score documentation in infants with perinatal acidosis (17-36%); and decreasing the incidence of infants discharged on anti-seizure medication (60-29%).
Conclusion:
In addition to providing hypothesis-generating research data, local and regional registry data can be successfully utilized for quality improvement efforts across multiple hospitals.
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