A Statewide Approach to Collaboratively Improve Access to Medical Genetics Services in Wisconsin

Area of Science:

• Medical Genetics
• Public Health Policy

Background:

• Lack of state-led initiatives for medical genetics in Wisconsin.
• Need for a collaborative approach to identify and address service gaps.

Purpose of the Study:

• To identify priority service-access needs in Wisconsin's medical genetics field.
• To establish strategies for addressing identified needs through stakeholder collaboration.

Main Methods:

• Utilized surveys and consensus-building tools.
• Engaged diverse stakeholders to drive the initiative.

Main Results:

• Identified four key priorities: improved coordination, increased Newborn Screening Program funding, Medicaid policy changes for genomic testing and genetic counseling reimbursement, and enhanced educational opportunities for providers.
• Established three active workgroups to advance these priorities.
• Achieved measurable progress including increased funding, policy advancements, and expanded education.

Conclusions:

• A stakeholder-driven process fostered engagement and collaboration within Wisconsin's medical genetics community.
• Workgroups facilitated progress in funding, policy, education, and advocacy.
• Sustained engagement is crucial for equitable access to genetic services statewide.