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Data Resources for Conducting Patient-Centered Outcomes Research at Federally Qualified Health Centers: The National
Lello Guluma1, Brian W Ward, Sonja N Williams
1National Center for Health Statistics, Hyattsville, MD.
Background:
Federally qualified health centers and look-alikes are outpatient care settings that provide primary care and other health services in health professional shortage areas and to their populations. Compiling and disseminating data from these centers that is accessible for patient-centered outcomes research (PCOR) is critical to understanding health care provided at these settings.
Objective:
To describe the National Ambulatory Medical Care Survey Health Center (NAMCS HC) Component, and how this redesigned survey can be utilized to understand health care provided at health centers, improve data capacity, and facilitate PCOR.
Methods:
Beginning in 2021, the NAMCS HC Component began collecting visit data through electronic health record (EHR) submission from a nationally representative sample of FQHCs and FQHC look-alikes. Resulting datasets are made available for researchers to analyze, used to produce readily available interactive data visualizations, and linked to external datasets.
Results:
The NAMCS HC Component and its resulting data resources are described. Availability of restricted and public datafiles is highlighted, with an example of how these can be used to study visits across different patient characteristics. Interactive dashboards are presented, including how researchers, health centers, and patients can view biannual preliminary visit rates/counts. Finally, linkages between the NAMCS HC Component and external data sources are highlighted, including how these linkages can be used to study health outcomes among different populations.
Conclusions:
EHR data collected from FQHCs and look-alikes through the redesigned NAMCS HC Component fills a gap to improve PCOR capacity at these unique settings.
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