Health Care Providers' Perceptions of Unmet Needs Among African American Cancer Caregivers: Qualitative Investigation Among US Medical Professionals

  • 0Center for Health Communication, The University of Texas at Austin, Austin, United States.

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Summary

This summary is machine-generated.

Health care providers recognize significant unmet needs of African American cancer caregivers, including practical, emotional, and cultural barriers. They recommend systemic changes, like compensating caregiving and integrating caregivers into care teams, to improve support and reduce disparities.

Area Of Science

  • Oncology Care Delivery
  • Health Disparities Research
  • Caregiver Support Systems

Background

  • African American caregivers face greater caregiving burdens and less support compared to White caregivers.
  • Limited research addresses the specific needs of African American cancer caregivers and healthcare provider perspectives.
  • Healthcare providers play a crucial role in connecting caregivers to resources and driving systemic improvements.

Purpose Of The Study

  • To understand healthcare providers' experiences supporting African American cancer caregivers.
  • To identify unmet needs and barriers faced by these caregivers from a provider's viewpoint.
  • To elicit actionable recommendations for enhancing caregiver support within healthcare settings.

Main Methods

  • Semistructured online interviews were conducted with 12 healthcare providers across 7 US states.
  • Participants were purposively sampled from facilities serving significant African American patient populations.
  • Data analysis utilized condensed thematic analysis guided by the McKillip needs assessment framework and socioecological model.

Main Results

  • Providers identified unmet needs including practical (transportation, financial), social-emotional (stress, burnout), and cultural barriers (medical mistrust, stigma).
  • Recommendations focused on formal acknowledgment and compensation of caregiving, integrating caregivers into multidisciplinary teams, leveraging cultural assets, and strengthening provider advocacy roles.
  • Findings highlight the need for systemic and structural changes beyond individual-level support.

Conclusions

  • Healthcare providers are key informants for understanding and addressing the needs of African American cancer caregivers.
  • Transformational change requires multilevel interventions, including policy, organizational restructuring, provider training, and trust-building initiatives.
  • This provider-focused approach offers pathways to reduce disparities and improve outcomes for African American cancer caregivers and patients.

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