Paediatric Resuscitation Outcome in Children with Heart Disease (ProCHD): protocol of a Germany-wide multicentre, prospective open registry
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View abstract on PubMed
Summary
This summary is machine-generated.This registry collects data on paediatric cardiac arrest in children with heart disease to improve understanding and outcomes. It aims to establish a standardized approach for data collection and follow-up for this vulnerable population.
Area Of Science
- Pediatric Cardiology
- Critical Care Medicine
- Clinical Research
Background
- Paediatric cardiac arrest (CA) carries significant risks of morbidity, disability, and mortality.
- Children with congenital heart disease have a substantially increased risk of CA.
- Limited data exists for paediatric CA in children with heart disease.
Purpose Of The Study
- To establish a standardized data collection and follow-up structure for paediatric cardiac arrests associated with heart diseases in Germany.
- To address the knowledge gap regarding this specific patient population.
- To understand the epidemiology, guideline adherence, and risk factors of paediatric CA in children with heart disease.
Main Methods
- A multicentre, prospective, open registry enrolling paediatric patients experiencing CA requiring at least 2 minutes of cardiopulmonary resuscitation.
- Collection of demographical, clinical, resuscitation, and outcome data following Utstein guidelines.
- Inclusion of neurological assessments, cognitive/motor tests, and patient-reported outcome measures; data pseudonymised and stored in a central REDCap database.
Main Results
- Primary outcomes include survival to discharge and neurodevelopmental outcomes at discharge and 2 years post-discharge.
- Data analysis will focus on epidemiology, guideline adherence, and risk factors.
- Results will be presented at conferences and submitted for peer-reviewed publication.
Conclusions
- This registry provides a crucial framework for understanding and improving care for paediatric cardiac arrest in children with heart disease.
- Standardized data collection and follow-up are essential for this understudied population.
- Findings will inform clinical practice, guideline development, and future research in paediatric cardiac critical care.
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