Beyond the dataset: integrating public voices in data science.

Ana-Paula Rubio1, Janette Dunn2, Janice Borthwick2

  • 1Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK. arubio@ed.ac.uk.

Summary

Patient and public involvement and engagement (PPIE) is crucial for health research quality. This article reflects on challenges in implementing PPIE within large-scale data science research consortia like SCONe.

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