Being broken: A qualitative study exploring unexpected death in the Paediatric Intensive Care Unit and the family experience of care
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View abstract on PubMed
Summary
This summary is machine-generated.Parents experienced profound grief after their child’s unexpected death in a paediatric intensive care unit (PICU). Care focused on respectful communication and family involvement significantly aided bereavement.
Area Of Science
- Pediatric Intensive Care Unit (PICU) care
- Bereavement and Grief Studies
- Qualitative Research Methods
Background
- Child death in a PICU is traumatic for parents.
- Grief after unexpected child death is poorly understood compared to known life-limiting conditions.
Purpose Of The Study
- To understand bereaved family members' experiences of care in a PICU following unexpected child death.
- To identify factors influencing parental grief and bereavement in the PICU setting.
Main Methods
- Qualitative study using focus groups and interviews with 15 family members.
- Thematic analysis of semistructured discussions guided by meaning reconstruction theory.
- Exploration of experiences 6 months to 5 years post-bereavement.
Main Results
- Participants described feeling 'broken' due to their child's death.
- Key themes included respectful communication, meaningful time, memory creation, support systems, and family inclusion.
- Both supportive and detrimental care elements impacting bereavement were identified.
Conclusions
- Respectful communication from trusted clinicians is vital.
- Providing meaningful time and opportunities for meaning-making supports families.
- Inclusive care for the entire family improves PICU bereavement practices for unexpected deaths.
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