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The Argentinian Crohn's Disease and Ulcerative Colitis Registry (RADECCU): Methodological aspects and objectives
Domingo Balderramo1, Joaquín Montero2, Juan Lasa3
1Gastroenterology Department, Hospital Privado Universitario de Córdoba, Instituto Universitario de Ciencias Biomédicas de Córdoba, Córdoba, Argentina.
The first national Inflammatory Bowel Disease (IBD) registry in Argentina, RADECCU, was established in 2023. It aims to collect crucial data on Crohn's disease and ulcerative colitis patients nationwide.
Area of Science:
- Gastroenterology and Hepatology
- Epidemiology
- Clinical Research
Background:
- Limited national-level data exists for Inflammatory Bowel Disease (IBD) in Argentina.
- Need for a centralized system to gather comprehensive information on IBD patients in the country.
Purpose of the Study:
- To describe the methodology and establishment of the Argentine Registry of Crohn's Disease and Ulcerative Colitis (RADECCU).
- To lay the foundation for collecting relevant patient information for IBD in Argentina.
Main Methods:
- The RADECCU registry platform was developed in January 2023.
- A national promotional campaign was conducted to encourage center participation.
- Data collection commenced following platform development and center recruitment.
Main Results:
- By June 2025, 69 centers (41 private, 28 public) joined the RADECCU registry.
- A total of 142 healthcare professionals were incorporated.
- The registry enrolled 4,081 patients (2,275 women, 1,806 men) with IBD.
Conclusions:
- RADECCU represents the first national registry for IBD in Argentina.
- The registry is poised to offer insights into the IBD landscape in Argentina.
- It has the potential to contribute valuable real-world evidence to Latin American IBD data.
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