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Filial Piety Under Pressure: A Qualitative Study of Dementia Caregiver Burdens in Rural China
1Department of Social Work, The Chinese University of Hong Kong, Hong Kong, China.
Abstract:
China has the world's highest dementia prevalence, disproportionately impacting rural areas. Nevertheless, few prior studies have examined the lived experiences of rural dementia caregivers. Six themes emerged from 25 in-depth interviews with these caregivers: 1) limited knowledge and misconceptions of dementia, 2) motivation for caregiving, 3) the quartet of burdens, 4) family conflicts and tension, 5) coping strategies, and 6) areas of need for support. Findings reveal how filial piety, structural constraints, and low dementia literacy interactively shape caregivers' experiences. Culturally relevant policies and service infrastructure are necessary to support dementia caregivers in rural or low-resource regions in China.
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