A longitudinal study of supportive care needs among Chinese parents of children with acute lymphoblastic leukemia
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View abstract on PubMed
Summary
This summary is machine-generated.Parental supportive care needs for children with leukemia peak post-diagnosis and decline during treatment. Key factors like education and income predict these evolving needs, guiding tailored interventions.
Area Of Science
- Pediatric Oncology
- Health Psychology
- Sociology of Health
Background
- Parental supportive care needs are crucial during a child's cancer diagnosis and treatment.
- Understanding the trajectory of these needs is essential for effective family-centered care.
Purpose Of The Study
- To determine parents' supportive care needs trajectories over 8 months post-diagnosis.
- To identify predictors of these evolving supportive care needs in parents of children with leukemia.
Main Methods
- Latent class growth modeling (LCGM) and growth mixture modeling (GMM) were used to identify need trajectories.
- Logistic regression identified factors predicting trajectory patterns among 100 Chinese parents.
- Supportive care needs were assessed across six domains at four key time points.
Main Results
- Parents' supportive care needs peaked immediately after diagnosis, declining throughout treatment.
- Distinct trajectories were identified across six supportive care domains (health care, daily care, psychological, medical, economic, emotional).
- Predictors included education, employment, income, residency, medical payment type, caregiving time, child's age, and parental self-efficacy.
Conclusions
- This study reveals dynamic, distinct trajectories in parental supportive care needs during pediatric cancer treatment.
- Findings support developing stage- and population-specific interventions for family-centered care.
- Results inform policy formulation for optimizing supportive care in pediatric oncology.
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