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Optimizing patient-reported outcomes for sarcoidosis.

Vivienne Kahlmann¹, Donald Simon², Marlies S Wijsenbeek¹

¹Centre of Excellence for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.

Current Opinion in Immunology

|January 15, 2026

Summary

This summary is machine-generated.

Patient-reported outcome measures (PROMs) are crucial for assessing sarcoidosis patients

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Area of Science:

Pulmonary Medicine
Rheumatology
Immunology

Background:

Sarcoidosis presents diverse symptoms impacting patient quality of life (QoL).
QoL is a key treatment priority for sarcoidosis patients.
Measuring patient-symptom experience is vital but challenging.

Purpose of the Study:

To review commonly used generic and disease-specific patient-reported outcome measures (PROMs) for sarcoidosis.
To summarize the psychometric properties of these PROMs.
To discuss limitations and future directions for PROM use in sarcoidosis.

Main Methods:

Literature review of PROMs in sarcoidosis.
Analysis of psychometric properties (validity, reliability, responsiveness).
Synthesis of findings on PROM application in clinical trials and practice.

Main Results:

Overview of frequently utilized generic and sarcoidosis-specific PROMs.
Summary of psychometric strengths and weaknesses of available measures.
Identification of gaps and opportunities for PROM development and implementation.

Conclusions:

PROMs are essential tools for evaluating sarcoidosis patient experience and treatment effectiveness.
Careful selection of PROMs based on psychometric properties is necessary.
Further research should focus on refining existing PROMs and developing new ones tailored to sarcoidosis.