Press release guide for genomic research and medicine: a framework co-developed with public contributors in Japan

Area of Science:

• Genomic Research Communication
• Scientific Reporting Ethics

Background:

• Press releases are crucial for disseminating genomic research in Japan to both media and the public.
• Genomic information requires responsible and comprehensive reporting due to ethical considerations.

Purpose of the Study:

• To develop a practical press release guide for genomic research.
• To support accurate and ethical communication of genomic research findings.

Main Methods:

• Collaborative development with diverse stakeholders, including the public.
• Inclusion of 12 key press release items, with five tailored to genomic research specifics.
• Integration of supplementary guidance and stakeholder insights.

Main Results:

• A comprehensive guide with 12 essential press release items.
• Five specialized guidelines for genomic research: protecting personal information, avoiding detrimental behavior change, considering individuals, preventing prejudice/discrimination, and avoiding genetic determinism.
• A new section, "From a different viewpoint," incorporates stakeholder perspectives.

Conclusions:

• The guide offers practical support for communicating genomic research results effectively.
• Enhancing reporting quality is critical due to the unique nature of genomic information.
• The guide promotes better communication among diverse stakeholders involved in genomic research.