Press release guide for genomic research and medicine: a framework co-developed with public contributors in Japan

Press releases on genomic research play an important role in Japan. Not only do journalists use them as major sources of news stories, but the public also accesses them directly across various media platforms. Given the unique characteristics of genomic information, including ethical implications, it is essential to report research results in a responsible and comprehensive manner. To support individuals involved in communicating such results, we developed a press release guide for genomic research in collaboration with diverse stakeholders, including members of the public. This guide outlines 12 key items for scientific research press releases, five of which are tailored to genomic research: protect personal information; avoid detrimental behavior change; consider individuals involved; avoid prejudice or discrimination; and avoid "genetic determinism." For each item, supplementary explanations and guidance are presented in the form of "Note" and "For Media." Additionally, fresh insights gained through the discussions with the diverse stakeholders are incorporated into a new section titled "From a different viewpoint." Genomic research is increasingly integrated into clinical practice and society, which indicates that reports on genomic studies directly affect a broader audience. Furthermore, enhancing the reporting quality of genomic research is critical because of the distinctive characteristics of genomic information. Our guide provides practical support for those disseminating genomic research results and will be valuable in promoting communication among stakeholders with different roles and expectations.