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Genetic testing in multiple sclerosis: Parental attitudes in a Turkish sample.

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Parental opinions on genetic testing for multiple sclerosis (MS) vary significantly. Factors like age, gender, education, and income influence concerns about privacy and family conflict versus its importance for family planning.

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Area of Science:

  • Genetics
  • Neurology
  • Public Health

Background:

  • Multiple sclerosis (MS) is a chronic neurological disease with potential genetic components.
  • Understanding parental perspectives on genetic testing is crucial for informed decision-making and support.
  • Genetic testing for MS can have significant psychosocial implications for families.

Purpose of the Study:

  • To investigate the opinions of parents diagnosed with MS and parents of children diagnosed with MS regarding genetic testing.
  • To identify demographic and socioeconomic factors influencing these opinions.
  • To explore concerns and perceived benefits associated with genetic testing in the context of MS.

Main Methods:

  • A questionnaire was administered to 326 parents across 52 provinces in Türkiye.
  • Data were collected on parental opinions concerning genetic testing for MS.
  • Statistical analyses were performed to identify significant differences based on demographic variables.

Main Results:

  • Parental opinions on genetic testing for MS were significantly influenced by age, gender, education, income, and perceived parenting challenges.
  • Fathers, lower socioeconomic groups, and older participants expressed concerns about security, confidentiality, and potential family conflict.
  • Mothers and higher education groups viewed genetic testing as important for family planning.

Conclusions:

  • Demographic and socioeconomic factors play a critical role in shaping parental attitudes towards MS genetic testing.
  • Addressing concerns about privacy and family dynamics is essential for effective genetic counseling.
  • Findings offer insights for health policy and medical practice in societies with similar cultural contexts.