Experience sampling methodology in pediatrics: a qualitative analysis of user perspectives on the PROfeel blended mHealth intervention for fatigue
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View abstract on PubMed
Summary
This summary is machine-generated.This study explored user perspectives on a blended mobile health intervention for pediatric fatigue management. Findings suggest user engagement is key for integrating this approach into pediatric care.
Area Of Science
- Pediatric Health
- Digital Health Interventions
- Qualitative Research Methods
Background
- Children with chronic conditions often experience persistent fatigue, influenced by biological and psychosocial factors.
- Mobile Health (mHealth) utilizing Experience Sampling Methodology (ESM) offers personalized insights into symptom management.
- Blended care models, combining digital and in-person support, can improve adherence and understanding of mHealth insights.
Purpose Of The Study
- To explore user and healthcare professional perspectives on a blended mHealth intervention (PROfeel) for pediatric fatigue management.
- To assess the feasibility and potential for integrating ESM-supported blended mHealth into pediatric care settings.
Main Methods
- An exploratory qualitative study using semi-structured interviews with patients (N=11), important others (N=11), and healthcare professionals (N=20).
- The intervention, PROfeel, involved a smartphone-based ESM period followed by in-person feedback and shared decision-making.
- Participants included patients aged 13-25, primarily parents as important others, and various healthcare professionals.
Main Results
- Patients and important others valued insights from ESM but found the effort challenging; ownership was fostered through independent use and parental support.
- Healthcare professionals focused on balancing patient value with intervention effort, defining roles, and addressing concerns about effectiveness and feasibility.
- Patient-reported value was crucial for PROfeel use, weighed against intervention demands and eligibility.
Conclusions
- ESM-supported blended care holds promise for early intervention in pediatric chronic conditions, accommodating autonomy and supporting insight interpretation.
- Successful integration into pediatric care requires active end-user involvement to maximize patient value and address practical implementation challenges.
- Hospital-wide implementation could cater to diverse clinical needs, but requires careful consideration of roles and resources.
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