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Related Experiment Video

Updated: Jan 20, 2026

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A practical step-by-step approach for patient and public involvement in eHealth intervention research: Lessons

Milon H M van Vliet1,2, Roxy A van Eersel1,2, Charlotte C Poot1,2

  • 1Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.

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|January 19, 2026
PubMed
Summary

This paper introduces a practical six-step approach to enhance patient and public involvement (PPI) in eHealth intervention research. It offers guidance for researchers to effectively integrate end-users throughout the research process.

Keywords:
End-user involvementLessons learnedParticipatory researchPatient and public involvementRecommendationseHealth

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Area of Science:

  • Digital Health
  • Health Services Research
  • Research Methodology

Background:

  • Patient and Public Involvement (PPI) is crucial for research quality and end-user benefit.
  • Implementing PPI in eHealth development presents unique challenges due to its complex nature.
  • A practical guide for PPI in eHealth intervention research is currently lacking.

Purpose of the Study:

  • To present a structured, step-by-step approach for implementing patient and public involvement in eHealth intervention research.
  • To provide practical guidance and resources for researchers navigating PPI in eHealth.

Main Methods:

  • The approach was developed using insights from three ongoing eHealth projects with diverse populations and PPI methods.
  • Iterative refinement occurred based on project findings and feedback from researchers and end-users.
  • The approach incorporates literature, practical field insights, and reflective questions for each step.

Main Results:

  • A six-step approach was created to guide PPI implementation in eHealth research.
  • Each step includes reflective questions, recommendations, lessons learned, case examples, and resources.
  • The steps address positioning in the evaluation cycle, rationale for PPI, target population, methodology, considerations, and process unfolding.

Conclusions:

  • The developed approach integrates theoretical knowledge with practical experience for effective PPI in eHealth.
  • This resource aims to inspire and support researchers in conducting meaningful patient and public involvement in their eHealth studies.