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Experiences of conflicting decision-making by surrogate decision-makers in neurocritical care in China: a descriptive
Sailu Mao1, Qianqian Cao2, Qihong Li3
1Nursing Department, Tongji Hospital,School of Medcine,Tongji University, Shanghai, China.
Objectives:
This study aimed to explore the experience of decision conflict among surrogate decision-makers for patients with critical illness undergoing neurosurgery.
Design:
A qualitative descriptive research design was used. Participants were selected using a purposive sampling method, and semi-structured interviews were conducted to collect data, which were then analysed using Colaizzi's seven-step analysis method.
Setting:
The study was conducted in a tertiary hospital in China.
Participants:
This study included 15 surrogate decision-makers for patients with critical illness undergoing neurosurgery as interview participants.
Results:
In this interview study, two main themes and nine subthemes were identified:(a) core conflict in the decision-making process: conflicts between the quality of life and the length of life, conflict between patient and surrogate preferences and conflict between the expected and realistic treatment outcomes; and (b) complex causes of decisional conflict: the burden of decision-making in critical care, inadequate decision-making information, erosion of patient-physician trust, socio-cultural pressures, overwhelming financial burden and negative emotional distress.
Conclusions:
Surrogate decision-makers for patients with neurological critical illness often experience complex decision conflicts during the clinical decision-making process. This underscores the need for healthcare providers to identify high-risk individuals for decision conflicts early on and provide personalised decision support strategies to mitigate such conflicts and enhance decision quality.
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