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Program Theory and Core Outcome Set Development for a Technology-Assisted Counseling Intervention in Dementia:

Dorothee Bauernschmidt1, Anja Bieber1, Ronja Hubrich1

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Summary
This summary is machine-generated.

This study developed a program theory for technology-assisted counseling in dementia care, improving support for family caregivers. A theory-led approach is crucial for effective intervention development and evaluation.

Keywords:
core outcome setcounselingdementiafamily caregiverlogic modeltheory

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Area of Science:

  • Gerontology
  • Health Services Research
  • Digital Health

Background:

  • Counseling for family dementia caregivers faces challenges in accessibility and effectiveness.
  • Technology-assisted counseling (ICT) shows inconsistent results, with heterogeneity in outcomes and evaluation methods.
  • Interventions often lack theoretical guidance, hindering development and assessment.

Purpose of the Study:

  • To develop an initial program theory for technology-assisted counseling interventions for family dementia caregivers.
  • To establish a data foundation for a consensus process on a core outcome set for these interventions.

Main Methods:

  • Integrated program theory development and core outcome set creation.
  • Conducted a scoping review of technology-mediated counseling interventions and clinical trial outcomes.
  • Performed phenomenological analysis of semistructured interviews with 15 family caregivers and 12 counselors.

Main Results:

  • Synthesized findings from 69 records (34 interventions), noting heterogeneity in design and ICT use.
  • Identified caregiver themes: healthcare system insecurity, information seeking.
  • Counselor themes: work standards, unpredictability, conditions, and tools.
  • Developed a program theory centered on 'having/being somebody to count on,' outlining a theory of change for sustainable supportive cooperation.

Conclusions:

  • A theory-led approach is essential for developing, implementing, and evaluating technology-assisted counseling in dementia care.
  • Combining technology with in-person counseling can improve access and overcome healthcare disparities.
  • Supporting counselors with AI for administrative tasks can address workforce shortages.