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Published on: January 17, 2025
Program Theory and Core Outcome Set Development for a Technology-Assisted Counseling Intervention in Dementia:
Dorothee Bauernschmidt1, Anja Bieber1, Ronja Hubrich1
1Institute of Health, Midwifery and Nursing Science, Medical Faculty, University Medicine Halle, Martin Luther University Halle-Wittenberg, Magdeburger Straße 8, Halle (Saale), 06112, Germany, 49 3455574466.
This study developed a program theory for technology-assisted counseling in dementia care, improving support for family caregivers. A theory-led approach is crucial for effective intervention development and evaluation.
Area of Science:
- Gerontology
- Health Services Research
- Digital Health
Background:
- Counseling for family dementia caregivers faces challenges in accessibility and effectiveness.
- Technology-assisted counseling (ICT) shows inconsistent results, with heterogeneity in outcomes and evaluation methods.
- Interventions often lack theoretical guidance, hindering development and assessment.
Purpose of the Study:
- To develop an initial program theory for technology-assisted counseling interventions for family dementia caregivers.
- To establish a data foundation for a consensus process on a core outcome set for these interventions.
Main Methods:
- Integrated program theory development and core outcome set creation.
- Conducted a scoping review of technology-mediated counseling interventions and clinical trial outcomes.
- Performed phenomenological analysis of semistructured interviews with 15 family caregivers and 12 counselors.
Main Results:
- Synthesized findings from 69 records (34 interventions), noting heterogeneity in design and ICT use.
- Identified caregiver themes: healthcare system insecurity, information seeking.
- Counselor themes: work standards, unpredictability, conditions, and tools.
- Developed a program theory centered on 'having/being somebody to count on,' outlining a theory of change for sustainable supportive cooperation.
Conclusions:
- A theory-led approach is essential for developing, implementing, and evaluating technology-assisted counseling in dementia care.
- Combining technology with in-person counseling can improve access and overcome healthcare disparities.
- Supporting counselors with AI for administrative tasks can address workforce shortages.
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