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Pilot Study of a Bereavement Referral Program for Parents Following Perinatal Death.
Kelly N Michelson1, Ashley Hayes2, Leonardo Barrera2
1Division of Critical Care Medicine (K.N.M.), Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois, USA; Department of Pediatrics (K.N.M., A.B.B.), Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
A new bereavement referral program (BRP) shows potential for addressing parent needs after perinatal death. Further research is needed to evaluate its impact on parental self-efficacy and outcomes.
Area of Science:
- Perinatal Medicine
- Bereavement Care
- Community Health Programs
Background:
- Perinatal death causes significant hardship for parents.
- Community-based support may alleviate these difficulties.
Purpose of the Study:
- To evaluate a new bereavement referral program (BRP) connecting parents to community resources post-perinatal death.
- To explore parent utilization of bereavement and practical resources.
- To assess the feasibility of gathering parent feedback on the BRP.
Main Methods:
- A prospective, mixed-methods study at an academic women's hospital, community organization, and children's hospital.
- Bereavement Referral Program (BRP) use was tracked via electronic health records.
- Parents (mothers and partners) were surveyed and interviewed 6 months post-perinatal death.
Main Results:
- 15.7% of eligible mothers utilized the BRP.
- 87% of surveyed individuals used community bereavement resources; 26% used practical resources.
- Interviews revealed themes on resource use, value, barriers, and BRP feedback.
Conclusions:
- The BRP implementation faced challenges but indicated potential for meeting parent needs.
- Future research should quantitatively assess the BRP's impact on self-efficacy and parent outcomes.
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