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Dementia01:30

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Dementia is a collective term for cognitive disorders primarily affecting memory, thinking, and reasoning. It is not a specific disease but a syndrome, with Alzheimer's disease being the most common cause, accounting for approximately 60-80% of cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. Dementia affects millions worldwide, particularly older adults, though it is not a normal part of aging.
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Using Retinal Imaging to Study Dementia
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Involving Societal Stakeholders in Dementia Risk Reduction: An Explorative Study.

Jolanda H M Dobbe1,2,3,4, Ellen M A Smets1,3,5, Esmee Kreuk1

  • 1Medical Psychology, Amsterdam UMC location AMC, University of Amsterdam, Amsterdam, the Netherlands.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
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PubMed
Summary

Societal stakeholders need more involvement in dementia risk reduction. Participants suggested integrating dementia risk education early in life and prioritizing policy-level interventions.

Keywords:
dementiaparticipatory researchpopulation‐level approachesrisk reductionsocietal stakeholders

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Area of Science:

  • Public Health
  • Gerontology
  • Sociology

Background:

  • Dementia risk reduction requires multi-level strategies.
  • Societal stakeholders are key to awareness and policy influence.

Purpose of the Study:

  • Identify societal stakeholders for dementia risk reduction.
  • Explore stakeholder perspectives on their roles.

Main Methods:

  • Qualitative approach with participatory elements.
  • Advisory panel of citizens (n=14).
  • Two-phase data collection: stakeholder identification (n=32) and perspective exploration (18 interviews, 1 focus group). Thematic analysis was used.

Main Results:

  • Stakeholders had limited knowledge and perceived low responsibility for dementia risk reduction.
  • Participants advocated for policy-level changes and obligatory risk reduction measures.
  • Recommendations included integrating dementia risk into general health campaigns and early-life education.

Conclusions:

  • Increased stakeholder involvement and policy measures can enhance dementia risk reduction.
  • Integrating dementia education early in life is crucial.
  • Further large-scale validation studies are needed across diverse stakeholder groups.