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Engaging Patients in Learning Health Systems Research Using Human Centered Design: A Scoping Review.

Dorsa Moslehi1,2, Lynn A Volk2,3, Samantha A Lee2,4

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Summary
This summary is machine-generated.

Human-Centered Design (HCD) effectively engages patients and the public in Learning Health System (LHS) research. This method drives healthcare innovation across diverse populations and conditions, enhancing participant satisfaction and system-level improvements.

Keywords:
human‐centered designlearning health systempatient engagementresearch design

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Area of Science:

  • Healthcare Innovation
  • Patient Engagement
  • Human-Centered Design (HCD)

Background:

  • Learning Health Systems (LHS) require patient and public engagement for innovation.
  • Effective methods for stakeholder involvement in LHS research are not well-defined.
  • This review explores Human-Centered Design (HCD) for patient and public engagement in LHS research.

Purpose of the Study:

  • To examine the application of Human-Centered Design (HCD) in engaging patients and the public within Learning Health System (LHS) research.
  • To identify effective HCD approaches for diverse populations in healthcare research.
  • To understand challenges and best practices in HCD for LHS stakeholder engagement.

Main Methods:

  • Scoping review following Joanna Briggs Institute methodology and PRISMA-ScR guidelines.
  • Searched MEDLINE, Cochrane Library, Embase, and Web of Science for relevant studies.
  • Data categorized by study characteristics, participant demographics, HCD methods, engagement levels, and satisfaction.

Main Results:

  • HCD engaged diverse participants (children, adults with cancer, dementia, stroke) and their families/clinicians.
  • Innovations spanned patient engagement, digital health, quality improvement, and care delivery.
  • Participatory workshops were common; challenges included limited engagement in later design stages like prototyping.

Conclusions:

  • HCD is effective for engaging diverse patients and the public in LHS research, driving targeted innovations.
  • HCD's adaptability allows for real-time adjustments, iteration, and inclusion of new populations.
  • Blending discussion-based and experiential methods enhances engagement and satisfaction; future research should optimize methods and integration.