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Exploring Factors That Impact Genetic Counseling Referral and Uptake Using Learning Health Approaches.

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This summary is machine-generated.

Many prostate cancer patients don't receive genetic counseling. Electronic Health Records (EHRs) reveal older patients and those not fully employed face barriers. Targeted interventions can improve access to these vital cancer genetic services.

Keywords:
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Area of Science:

  • Oncology
  • Genetics
  • Health Services Research

Background:

  • Germline testing and genetic counseling are recommended for cancer patients, but access is inconsistent.
  • Electronic Health Records (EHRs) can track referral and uptake of genetic counseling services.
  • Prostate cancer patients are a key demographic for assessing genetic service utilization.

Purpose of the Study:

  • To analyze demographic factors influencing genetic counseling referral and uptake in prostate cancer patients.
  • To utilize EHR data within a learning health system model to identify disparities.
  • To establish a baseline for improving access to cancer genetic services.

Main Methods:

  • Retrospective analysis of EHR data from prostate cancer patients meeting genetic counseling criteria (Jan 2018-June 2022).
  • Inclusion of demographic variables: age, race, employment, insurance, and geographic region.
  • Statistical analyses including descriptive statistics, comparative analyses, and regression modeling.

Main Results:

  • Only 34.2% of patients received genetic counseling referrals, with 73% completing a visit.
  • Older patients showed lower referral and completion rates.
  • Full-time employment correlated with higher referral rates; White and rural patients had higher uptake.

Conclusions:

  • EHR data effectively identifies demographic disparities in genetic counseling access.
  • A learning health system approach using EHRs can guide interventions to reduce disparities.
  • Improving access to genetic services can enhance cancer patient outcomes.