Development and implementation of measurement-based care for children and youth with complex mental and neurodevelopmental needs: early experiences from Ontario's Extensive Needs Service
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Summary
This summary is machine-generated.Measurement-based care (MBC) implementation in pediatric neurodevelopmental services shows promise. Engaging clinicians and families, and integrating PROMs into workflows, are key for successful, evidence-based care for children with complex needs.
Area Of Science
- Pediatric Neurodevelopmental Health
- Health Services Research
- Clinical Informatics
Background
- Measurement-based care (MBC) is vital for informing clinical decisions using patient-reported outcome measures (PROMs).
- Application of MBC in neurodevelopmental pediatric populations with complex co-occurring conditions is limited.
- This study addresses the gap by implementing and evaluating MBC in such a population.
Purpose Of The Study
- To implement and evaluate Measurement-based Care (MBC) in Ontario's Extensive Needs Service (ENS) program for neurodevelopmental pediatric populations.
- To assess the feasibility and impact of integrating patient-reported outcome measures (PROMs) into clinical workflows.
- To gather insights for optimizing MBC in complex pediatric care settings.
Main Methods
- MBC was implemented across three hospital sites serving neurodevelopmental pediatric populations.
- Patient-reported outcome measures (PROMs) were selected through literature review and stakeholder consultation.
- A logic model guided evaluation, with data collected at baseline and intervals; clinician training was provided.
Main Results
- 381 participants entered the program between April 2023 and April 2025.
- PROM completion rates were highest at baseline and decreased over time.
- Shorter PROMs demonstrated higher completion rates than longer ones.
Conclusions
- Successful MBC implementation in complex pediatric populations requires early and continuous engagement of clinicians and families.
- Integration of MBC into care processes is crucial for its effectiveness.
- MBC is essential for guiding clinical care, treatment planning, and evaluating new therapies for children with complex needs.