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Let's Co! The how-to of working within a co-production framework to devise, design and execute collaborative
Sarah Maguire1,2, Genevieve Pepin2,3, Shannon Calvert2
1Faculty of Medicine and Health, InsideOut Institute for Eating Disorders, University of Sydney and Sydney Local Health District, Sydney, New South Wales, Australia.
This study details a collaborative co-production process for designing eating disorder research. It outlines the steps, principles, and lessons learned in developing three large-scale studies for a national research center.
Area of Science:
- Mental Health Research
- Collaborative Study Design
- Eating Disorders Research
Background:
- Developing large-scale, clinically focused studies for eating disorders requires robust design.
- The Australian Government funded a National Centre for Research and Translation in Eating Disorders (AEDRTC) to advance research.
- There is a need for documented practical approaches to co-production in large research initiatives.
Purpose of the Study:
- To document the co-production process for selecting and designing three major eating disorder studies.
- To highlight the principles, values, phases, and activities guiding collaborative research design.
- To contribute to the literature on co-production in large-scale research teams and studies.
Main Methods:
- A 1-year full co-production process involving lived experience, clinical, and research collaborators.
- Collaborative ideation, selection, and design of three multisite, clinically focused studies, including two clinical trials.
- Establishing governance, structure, intellectual property (IP) clauses, and principles for shared design.
Main Results:
- The manuscript details the key stages of co-production for agenda setting and study design.
- It outlines the establishment of governance, novel IP clauses, and processes for collaborative design.
- Emerging themes and lessons learned, including inherent tensions in co-production, are discussed.
Conclusions:
- The co-production process successfully guided the selection and design of three complex eating disorder research studies.
- Documenting this process provides practical insights for future large-scale collaborative research.
- Understanding co-production dynamics is crucial for effective research translation and agenda setting.
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