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Performance indicators for organ donation and transplantation programmes in Europe: modified Delphi consensus study.

Simon Streit1, George Wharton2, Jasmine Mah3

  • 1Institut für Neuropathologie, Charité Universitätsmedizin, Berlin, Germany.

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Summary
This summary is machine-generated.

A new scorecard with 84 indicators was developed to assess national organ donation and transplantation programmes. This tool aids in evaluating and improving transplant system performance and policy development.

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Area of Science:

  • Health policy research
  • Transplantation science
  • Public health indicators

Background:

  • Assessing health system performance is crucial for identifying areas of improvement and guiding policy.
  • While facility-level organ donation and transplantation indicators are established, national program assessment lacks consensus.
  • This study aimed to create a comprehensive scorecard for evaluating national organ donation and transplantation programs.

Purpose of the Study:

  • To develop a standardized, validated scorecard for assessing national organ donation and transplantation program performance.
  • To establish a consensus-based set of indicators for national transplant system evaluation.
  • To support evidence-informed policy development and performance benchmarking across countries.

Main Methods:

  • A three-step approach involving a literature review, expert consultation, and a modified Delphi consensus process.
  • 168 potential indicators were evaluated by international experts in health policy, organ donation, transplantation, and patient advocacy.
  • Consensus for indicator inclusion required 80% agreement, with 24 and 22 experts participating in two rounds.

Main Results:

  • A final set of 84 indicators was established across seven domains: monitoring and reporting, prevention and need, waiting lists, consent, donation, transplantation, and follow-up.
  • The scorecard includes established metrics (e.g., waiting list statistics, donation rates) and novel system-level indicators (e.g., structural factors, patient-centeredness, equity).
  • 103 out of 168 evaluated indicators achieved consensus for inclusion.

Conclusions:

  • The validated indicator set offers a standardized tool for assessing and comparing transplant system performance.
  • This scorecard facilitates performance benchmarking and supports evidence-informed policy development in organ donation and transplantation.
  • The comprehensive set of indicators addresses multiple facets of national transplant programs, from donation to patient follow-up.