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Inclusion of Children With Chronic Diseases or Disabilities in Studies Assessing Measurement Properties of Physical
Mahdi Rostami Haji Abadi1, Farzana Sadia1, Sarah A Moore2,3
1Faculty of Health Sciences, University of Lethbridge, Lethbridge, AB, Canada.
Insights
Few physical activity (PA) questionnaires are validated for children with chronic conditions. Studies often exclude these children, with reporting on inclusion/exclusion remaining low despite slight improvements over time.
Area of Science:
- Pediatric Health
- Measurement Properties
- Physical Activity Assessment
Background:
- Systematic reviews identified a gap in physical activity (PA) questionnaire validation for children with chronic conditions or disabilities.
- Limited data exists on the inclusion or exclusion of these specific pediatric populations in PA measurement studies.
Purpose of the Study:
- To determine if PA questionnaires are developed or validated for children with chronic conditions or disabilities.
- To assess the reporting of inclusion/exclusion criteria for these children in PA studies.
- To examine trends in reporting over time.
Main Methods:
- Combined data from 3 systematic reviews of PA questionnaires for children (N=216).
- Extracted information on study populations and inclusion/exclusion of children with chronic conditions or disabilities.
- Used Chi-square tests to analyze changes in reporting over time.
Main Results:
- Only 4% of studies (8 papers) specifically evaluated or developed PA questionnaires for children with chronic conditions or disabilities.
- 22% of studies reported on inclusion/exclusion criteria, with exclusions (19%) being more common than inclusions (6%).
- While reporting improved in the latest review (31%), it remained low; common exclusions involved all chronic conditions or limitations in PA participation.
Conclusions:
- There is a need for more physical activity (PA) questionnaires developed and validated in pediatric populations with chronic conditions or disabilities.
- Researchers should strive to include children with chronic conditions or disabilities in PA studies whenever feasible to improve representativeness.
Background:
This review combined studies included in 3 systematic reviews of the measurement properties of physical activity (PA) questionnaires in children to explore: (1) if any questionnaire was specifically developed for or validated in children with chronic conditions or disabilities; (2) to what extent the inclusion/exclusion of these children was reported; (3) whether any specific chronic conditions or disabilities were more commonly excluded; and (4) if the percentage of papers reporting inclusion/exclusion of children with chronic conditions or disabilities changed over time.
Methods:
Two independent investigators reviewed included papers (N = 216) that reported at least one psychometric property of PA questionnaires for children and extracted data, including study populations and inclusion/exclusion of children with chronic conditions or disabilities. Chi-square tests were used to assess changes in reporting about inclusion/exclusion of these children between the 3 reviews.
Results:
Only 8 papers (4%) evaluated newly developed questionnaires or tested existing ones specifically in children with chronic conditions or disabilities. Forty-eight papers (22%) reported whether they included or excluded children with chronic conditions or disabilities. About 3 times more papers reported exclusion (n = 40; 19%) versus inclusion (n = 13; 6%) of children with chronic conditions or disabilities. Exclusions included either all chronic conditions or disabilities, those limiting PA participation, or specific chronic conditions or disabilities. Although more studies in the latest review reported about inclusion/exclusion (P < .05), the proportion remained low (31%).
Conclusion:
More PA questionnaires should be developed and/or validated in children with chronic conditions or disabilities and studies should avoid excluding these children whenever possible.
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