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Designing and Validating Cuidador Web App for Self-Reported Pain among Children and Adolescents in Oncology Care
Janaina Chinaque Francisco1, Mariele Gobo de Oliveira1, Michelle Cristine De OliveiraMinharro1
1Department of Nursing, Botucatu Medical School, Universidade Estadual Paulista, 751, Damião Pinheiro Machado, São Paulo, Botucatu, Brazil.
Insights
A new mobile app, CuidaDor Web App, helps children and adolescents manage cancer pain. Validated by experts and users, it aids self-reported pain assessment during hospitalization and at home.
Area of Science:
- Pediatric Oncology
- Health Informatics
- Digital Health
Background:
- Pain management in pediatric oncology is crucial.
- Effective tools are needed for self-reported pain assessment in young cancer patients.
- Existing methods may lack engagement or accessibility for children and adolescents.
Purpose of the Study:
- To construct and validate the "CuidaDor Web App" for guiding children and adolescents in oncological care regarding self-reported pain.
- To assess the content validity and face validity of the mobile application.
Main Methods:
- A descriptive study using systematic instructional design (2022-2023) in Brazilian pediatric care settings.
- Content validation by healthcare professionals (Content Validity Index [CVI] ≥ 0.80).
- Face validation with children and adolescents (≥ 90% agreement rate).
Main Results:
- The CuidaDor Web App was successfully developed and validated.
- Overall content validation index was 0.95.
- Face validation achieved over 90% concordance among 24 child and adolescent participants.
Conclusions:
- The CuidaDor Web App is a validated tool for managing pain in pediatric cancer patients.
- The application can support pain assessment during hospitalization and at home.
- Further research is needed to optimize age-specific use and integration into nursing practice.
Abstract:
This study aimed to construct and validate a mobile application to guide children and adolescents in oncological care in self-reported pain. This is a descriptive study, based on a systematic instructional design that was conducted from 2022 to 2023 on working in pediatric care at two hospitals in Brazil. The content was validated by healthcare professionals, using the content validity index and cutoff score of 0.80. Face validity was assessed by children and adolescents, and a 90% agreement rate was used. The application, named "CuidaDor Web App," comprises four sections: user identification, presence of pain through numerical and facial scales and a body map, history of records, and informative materials. In the content evaluation, the judges assessed seven items: Language, Content, Illustrations, Layout, Motivation, Relevance, and Usability Assessment. The overall content validation index was 0.95. A face validation involved 24 children and adolescents, achieving over 90% concordance rate. However, usability requires parents' assistance for children using the tool. The CuidaDor Web App was developed and validated by healthcare professionals, children, and the target audience. The app may contribute to the management of pain in children and adolescents with cancer during hospitalization and at home. Future studies are needed to evaluate the age group that benefits most from technology and the use of the application as a tool for nurses and healthcare professionals.
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