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Ethical Issues in HIV-related Social Network Research Involving Substance-Using Sexual Minorities at Risk for HIV.

Britt Skaathun1, Alera Dermody1, Karla D Wagner2

  • 1Department of Medicine, Divison of Infectious Diseases and Global Public Health, University of California San Diego, La Jolla, CA, USA.

Connections (Toronto, Ont.)
|January 26, 2026
PubMed
Summary
This summary is machine-generated.

Social network research (SNR) benefits HIV prevention for substance-using sexual minorities, outweighing perceived risks. Participants favored community consent and mixed methods for informed consent, with concerns about sharing last names.

Keywords:
HIVResearch ethicsSocial network analysis

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Area of Science:

  • Social network research
  • HIV prevention
  • Sexual minority health

Background:

  • Social network research (SNR) often involves collecting data from individuals about their network members without explicit consent.
  • Substance-using sexual minorities at risk for HIV face unique challenges regarding privacy and consent in research.

Purpose of the Study:

  • To assess the perceived benefits and risks of SNR among substance-using sexual minorities at risk for HIV.
  • To understand preferred informed consent processes for this population in HIV research.

Main Methods:

  • Qualitative thematic analysis of 20 interviews with cisgender men of color who have sex with men and reported substance use.
  • Exploration of perceived risks/benefits of SNR related to HIV, comparison to daily life risks, and preferred consent formats.

Main Results:

  • Most participants viewed SNR favorably, perceiving it as less risky than daily life.
  • Participants preferred "community consent" through network member recruitment and felt HIV research benefits outweighed risks.
  • Mixed opinions on sharing identifying information (e.g., last names) regarding substance use; preferred consent involved lay-language video and written formats.

Conclusions:

  • The perceived benefits of SNR for HIV prevention and care outweigh the risks for this population.
  • Researchers should carefully consider the necessity of collecting last names in HIV-related SNR.
  • Community consent and accessible, mixed-methods consent formats are crucial for ethical SNR in vulnerable populations.