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Socio-Emotional Wellbeing in Parents of Children with Neurodevelopmental Disorders: A Systematic Review
Mª Lourdes Álvarez-Fernández1, Celestino Rodríguez2
1Department of Psychology, Sociology and Philosophy, University of León, 24071 León, Spain.
Insights
Interventions supporting parents of children with neurodevelopmental disorders (NDDs) are emerging. Culturally relevant and accessible programs show promise for improving parental socio-emotional wellbeing and family outcomes.
Area of Science:
- Psychology
- Social Sciences
- Family Studies
Background:
- Parents of children with neurodevelopmental disorders (NDDs) experience significant socio-emotional challenges, including stress, fatigue, and isolation.
- These challenges negatively impact parental wellbeing and child development.
- Existing research often focuses narrowly, necessitating a broader review, especially post-COVID-19.
Purpose of the Study:
- To systematically review interventions aimed at enhancing the socio-emotional wellbeing of parents with children with NDDs.
- To characterize recent research trends, specific intervention targets, and effectiveness.
- To identify gaps and guide future research in this area.
Main Methods:
- Systematic literature review of studies published between 2020-2025, sourced from ERIC and Web of Science databases.
- Inclusion criteria focused on socio-emotional programs for parents/caregivers of children with NDDs.
- Narrative synthesis of 16 selected studies (approx. 1100 participants) following PRISMA 2020 guidelines.
Main Results:
- A limited but increasing body of research exists on interventions for parents of children with NDDs.
- Intervention effectiveness appears influenced by cultural relevance, accessibility, and contextual fit.
- Preliminary evidence suggests promising outcomes, though the methodological landscape is complex.
Conclusions:
- Further research is needed to develop multisystemic interventions.
- Engaging diverse societal contexts and stakeholders is crucial for optimizing child and family wellbeing.
- Future interventions should prioritize cultural sensitivity and accessibility.
Abstract:
Background/Objectives: Neurodevelopmental disorders (NDDs) require contextual approaches emphasizing family roles. Parents of children with NDDs face a complex socio-emotional reality. They may experience high levels of stress, fatigue, depression, and feelings of guilt and uncertainty, and they are often left feeling isolated and unsupported. All of these factors increase their socio-emotional vulnerability and affect their children's wellbeing. A significant part of the available evidence has focused on parents of typically developing children or on a single construct. For these reasons, and considering the impact of the COVID-19 pandemic, the aim of this study was to review interventions targeting the improvement of the socio-emotional wellbeing of parents of children with NDDs, in order to characterise recent research, the specific constructs addressed, and the effectiveness of interventions. Methods: No prior protocol/registration. ERIC and Web of Science databases (selected for their broad multidisciplinary coverage in psychology and social sciences) were searched from 2020-2025 (last search: 7 September 2025), limited to English/Spanish publications. Inclusion criteria encompassed parents/primary family caregivers of children with NDDs receiving socio-emotional programs. Two independent reviewers screened the titles/abstracts and full texts, resolving disagreements through discussion. Following PRISMA 2020 guidelines, this systematic review employed narrative synthesis without risk-of-bias assessment and included 16 studies (approximately, 1100 participants). Results: The analysis indicated a scarce but growing scientific output, with a complex methodological landscape showing promising preliminary convergence in intervention outcomes. Interventions effects appeared mediated by cultural suitability, accessibility, and contextual alignment. Conclusions: Future work should pursue multisystemic approaches engaging diverse societal contexts and agents to optimize child and family wellbeing.
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