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Understanding Sleep Challenges in Pediatric Palliative Care: A Patient-Focused Scoping Review and Implications for
Giorgia Varallo1, Anna Mercante2, Valentina Baldini1,2
1Department of Biomedical, Metabolic, and Neural Sciences, University of Modena and Reggio Emilia, 41125 Modena, Italy.
Journal of Clinical Medicine
|January 28, 2026
Summary
Sleep disturbances significantly impact children in pediatric palliative care (PPC) and their families. Addressing child and environmental factors through interdisciplinary collaboration is crucial for improving sleep quality and overall well-being.
Area of Science:
- Pediatric Palliative Care
- Sleep Medicine
- Quality of Life Research
Background:
- Sleep disturbances are common in children receiving pediatric palliative care (PPC).
- These disturbances negatively affect the quality of life for both patients and their families.
- Understanding contributing factors is essential for developing targeted interventions.
Purpose of the Study:
- To conduct a scoping review of factors contributing to sleep disturbances in pediatric palliative care.
- To analyze child-related factors (pain, repositioning, epilepsy) and environmental factors (light, noise, care setting).
- To discuss the role of interdisciplinary collaboration in improving sleep outcomes.
Main Methods:
- Scoping review of existing clinical studies.
- Analysis focused on child-specific and environmental influences on sleep.
- Examination of interdisciplinary approaches to sleep management.
Main Results:
- Identified key child-related factors like pain, repositioning needs, and epilepsy contribute to sleep issues.
- Highlighted environmental factors such as light, noise, and the care setting as significant.
- Emphasized the importance of interdisciplinary teamwork in addressing sleep disturbances.
Conclusions:
- Sleep disturbances in pediatric palliative care are multifactorial, involving patient symptoms and the care environment.
- Interdisciplinary collaboration is vital for optimizing sleep and enhancing the well-being of children in PPC.
- Further research is needed to develop evidence-based interventions for sleep improvement.
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