Family Perspectives on Pediatric Complementary and Integrative Medicine Practices in Pediatric Hematology and...

Families of children with cancer and nonmalignant blood disorders frequently explore complementary medicine (CM). Despite growing evidence supporting CM for pediatric populations, physician communication about its use remains limited. This study evaluates caregiver awareness, interest, and use of CM among pediatric hematology/oncology patients.

A cross-sectional survey was conducted among caregivers at the University of North Carolina Pediatric Hematology/Oncology Clinic (May-September 2024). Eligible participants spoke English or Spanish and had attended at least one clinic visit. The survey assessed awareness and use of CM, including nutrition, supplements, mind-body practices (e.g., prayer, acupuncture, and yoga), and whole medical systems (e.g., traditional Chinese and Ayurvedic medicines)-as well as costs, motivations, and barriers.

A total of 150 caregivers completed the survey. Only 30% of respondents were familiar with CM terminology, yet 58% reported using at least one CM form. Dietary modifications were most common (47%), followed by mind-body practices (20%). Caregivers of cancer patients prioritized CM to reduce treatment side effects, whereas caregivers for those of patients with nonmalignant hematology conditions prioritized long-term quality-of-life. Barriers included lack of awareness (61%) and cost (15%). Only 17% had discussed CM or PIM (pediatric integrative medicine) with clinicians, and in most cases (60%), caregivers initiated the conversation.

Findings highlight significant gaps in awareness, access, and clinician-family communication regarding pediatric CM. Despite limitations such as single-site design and modest sample size, results underscore the need for caregiver education and accessible services to better support pediatric patients and families.