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Speaking Up: Communication Rights and the Lived Experiences of Children With Cleft Palate
Cassandra Alighieri1, Kim Bettens1, Kristiane Van Lierde1
1Department of Rehabilitation Sciences, Centre of Speech and Language Sciences, Ghent University, Belgium.
Language, Speech, and Hearing Services in Schools
|January 29, 2026
Summary
Children with cleft palate experience challenges in communication and social integration. Speech therapy can enhance their confidence and inclusion, but access to tailored services remains a barrier to fully exercising communication rights.
Area of Science:
- Pediatric communication disorders
- Child rights and advocacy
- Qualitative research methodologies
Background:
- Cleft palate affects speech, feeding, hearing, dentition, aesthetics, and social integration.
- Children's communication rights are outlined in the UN Convention on the Rights of the Child (CRC).
- Understanding children's lived experiences is crucial for effective support.
Purpose of the Study:
- To explore the lived experiences of children with cleft palate regarding their communication rights.
- To examine how speech-language therapy influences self-expression, social engagement, and participation.
- To align findings with CRC Articles 12, 13, and 23.
Main Methods:
- Qualitative study involving six children (aged 6-13) with cleft palate.
- Semistructured interviews and participatory methods were utilized.
- Hybrid thematic analysis (inductive and deductive) was applied to interview data.
Main Results:
- Three themes emerged: Voice, Agency, and Participation; Freedom of Expression and Emotional Safety; Awareness of Difference and Need for Support.
- Speech therapy positively impacts confidence and social inclusion.
- Barriers include limited access to tailored services and communication difficulties hindering expression.
Conclusions:
- Speech interventions are vital for upholding children's communication rights.
- Child-centered approaches prioritizing children's voices are essential.
- Addressing systemic inequities is necessary for children with cleft palate to exercise their rights fully.
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