Navigating healthcare among Canadians with ASD during transitions to adulthood: How does it look like from the perspectives of stakeholders?

  • 0Department of Occupational Therapy, Dalhousie University, Halifax, Canada.

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Summary

This summary is machine-generated.

Navigating healthcare systems during the transition to adulthood is challenging for individuals with autism spectrum disorder (ASD). Key factors for success include information sharing, community programs, and coordinated healthcare support.

Area Of Science

  • Healthcare Navigation
  • Autism Spectrum Disorder (ASD)
  • Transition to Adulthood

Background

  • The transition to adulthood poses unique challenges for individuals with ASD and their families, especially in healthcare system navigation.
  • Limited information exists on effectively navigating healthcare systems during this critical life stage.

Purpose Of The Study

  • To explore stakeholder experiences in navigating healthcare systems for individuals with ASD.
  • To identify crucial components for successful healthcare navigation during the transition to adulthood.

Main Methods

  • Conducted in-depth interviews with 20 participants (6 youth with ASD, 10 parents, 4 service providers).
  • Employed thematic analysis to interpret interview data.

Main Results

  • Identified three essential themes for healthcare navigation: information sharing, community-based programs, and healthcare coordination.
  • Information sharing requires accessible and comprehensive resource exchange.
  • Community programs and coordinated support are vital for facilitating access and transition.

Conclusions

  • Findings identify key factors influencing healthcare system navigation for youth with ASD.
  • Highlights the importance of navigational services and support interventions for successful transitions.
  • Addresses a gap in literature regarding healthcare navigation for individuals with ASD.

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