Navigating healthcare among Canadians with ASD during transitions to adulthood: How does it look like from the...

The transition to adulthood presents specific challenges for individuals with autism spectrum disorder (ASD) and their parents, particularly in navigating healthcare systems and adapting routines. Despite the importance of this transition, effectively navigating the healthcare system remains difficult and there is limited information specifically on healthcare navigation. This study aims to address this gap by exploring the experiences of stakeholders to gain a comprehensive understanding and identify crucial components for successfully navigating healthcare systems.

In-depth interviews were conducted with 20 participants, including 6 youth with ASD, 10 parents of youth with ASD, and 4 service providers from Canadian provinces. The interviews were analyzed thematically to extract meaningful insights.

Thematic analysis revealed three main themes essential to navigating the healthcare system: (a) information sharing, emphasizing the significance of accessible and comprehensive information exchange regarding healthcare resources; (b) community-based programs, underscoring the role of community resources and support networks in facilitating healthcare access and transition; and (c) healthcare coordination, highlighting the necessity of tailored and ongoing support mechanisms to assist individuals with ASD during the transition process.

This study contributes to the existing literature on the transition to adulthood for individuals with ASD by identifying key factors influencing healthcare system navigation. Recognizing and addressing these factors are vital due to their profound impact on youth and their families. The findings highlight the importance of accessing navigational services to facilitate a successful transition of healthcare systems and can inform the development of navigational support interventions. CONTRIBUTION TO THE LITERATURE.