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Close, Yet Limited: The Conditional Nature of Family Involvement in the ICU
Ann-Charlotte Falk1, Sofia Almerud Österberg2, Catharina Frank2,3
1Department of Health Promoting Science, Sophiahemmet University, Stockholm, Sweden.
Nursing in Critical Care
|February 1, 2026
Summary
Family participation in the intensive care unit (ICU) is conditional, requiring proximity, recognition, and information. Enhancing communication and relationships is key for meaningful family involvement during critical illness.
Area of Science:
- Critical Care Medicine
- Patient and Family Experience
- Qualitative Research
Background:
- Relatives significantly impact patient outcomes in the ICU, influencing recovery and mortality.
- Understanding relatives' perspectives on their involvement is crucial for optimizing care.
Purpose of the Study:
- To explore the meaning of participation in the intensive care unit (ICU) from the perspective of close relatives.
Main Methods:
- Qualitative research design utilizing thematic analysis.
- Interviews conducted with 12 close relatives of ICU patients.
Main Results:
- Family participation in the ICU is described as conditional during critical illness.
- Key themes include being central to the event, being recognized as a unique individual, and receiving adequate information.
Conclusions:
- Family engagement in the ICU is dependent on physical/emotional closeness, relationships, and information access.
- ICUs should foster structured, inclusive, and responsive participation through improved communication and consistent relationships.
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