Engaging Stakeholders in Co-Developing the Michigan Stroke Transitions Trial (MISTT) Website Intervention.
Summary
Developing patient-centered transitional care (TC) websites for stroke survivors requires community engagement. User-centered design (UCD) and usability are crucial for effective technology-based TC interventions post-stroke.
Area of Science:
- Rehabilitation Medicine
- Health Informatics
- Patient-Centered Care
Background:
- Post-stroke transitional care (TC) presents significant physical and psychosocial challenges.
- Technology-based interventions show promise for enhancing self-management but lack user-centered design (UCD) and usability evidence.
Purpose of the Study:
- To co-develop online, patient-centered transitional care materials for stroke survivors.
Main Methods:
- Community-engaged rapid participatory appraisal methods were employed.
- Focus groups and usability evaluations involved stroke survivors, caregivers, and healthcare professionals.
- These methods informed the design and usability of a co-developed website addressing TC needs.
Main Results:
- A staged, iterative website development process was utilized, progressing from concept to final product.
- Community engagement shaped the website's content, design, and functionality based on TC experiences.
- Universal design principles were adapted to meet the specific needs and preferences of stroke survivors and caregivers.
Conclusions:
- Transitional care experiences following stroke are varied, emphasizing the need for diverse perspectives.
- Community-engaged UCD is essential for creating effective patient-centered, technology-based TC interventions.
- While aligning with UCD and usability principles, community-engaged methods necessitate dedicated resources for sustainable partnerships.
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