Engaging Stakeholders in Co-Developing the Michigan Stroke Transitions Trial (MISTT) Website Intervention
Background:
Complex physical and psychosocial transitional care (TC) challenges occur post-stroke. Although technology-based TC interventions promise to increase self-management, user-centered design (UCD) and usability evidence is limited.
Objective:
Co-develop online post-stroke patient-centered materials.
Methods:
Using community-engaged rapid participatory appraisal methods, survivors, caregivers, and health care professionals participated in focus groups and usability evaluations to inform the design and usability of a co-developed website addressing post-stroke patient-caregiver TC needs.
Results:
A staged iterative website development process evolved: original concept to wireframe prototype, beta web-site, and final website. Community-engagement informed final content, design, and functionality based on TC experiences. Universal website design guidelines were tailored to stroke survivor-caregiver needs and preferences.
Lessons Learned:
Post-stroke TC experiences are diverse; more voices matter. Community-engaged rapid participatory appraisal methods align with UCD and usability principles but require dedicated resources and funding for sustainable partnerships.
Conclusions:
Community-engaged UCD is critical to creating patient-centered technology-based post-stroke TC interventions.
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