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Identifying knowledge gaps in managing premature children: A parental perspective study.

Ourania S Kotsiou1, Konstantinos I Gourgoulianis2, Livia N Bonnard3

  • 1Laboratory of Human Pathophysiology, Department of Nursing, University of Thessaly School of Health Sciences, Larissa, Greece.

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Summary

Parents of premature children face significant knowledge gaps regarding health, education, and social support. Improved communication from professionals is crucial for the well-being and development of children born prematurely.

Keywords:
Developmenteducationhealthprematuritysupport

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Area of Science:

  • Pediatrics
  • Developmental Psychology
  • Public Health

Background:

  • Premature birth presents lifelong challenges for children and families.
  • Parents often lack adequate information on managing health, educational, and social needs.
  • Existing support systems may not effectively reach families of premature children.

Purpose of the Study:

  • To identify knowledge gaps experienced by parents of premature children.
  • To assess information and support provided by healthcare, education, and social services.
  • To understand parental experiences from birth through adulthood.

Main Methods:

  • A questionnaire was developed and administered to 187 mothers across five European countries.
  • The survey assessed perceived information deficits and support availability.
  • Data collection focused on health, developmental, and educational aspects.

Main Results:

  • Significant parental knowledge gaps were identified in health (e.g., developmental disorders awareness at 39.6%) and education (47.6% experienced uncommunicated learning problems).
  • Awareness of support systems was low (22.5% knew of psychological support groups, 11.2% medical groups).
  • Parents reported poor understanding of their child's needs by educational institutions (9.1% school nurses, 13.9% schools) and limited knowledge of state benefits (19.8%).

Conclusions:

  • A critical need exists for enhanced communication and information dissemination from professionals to parents of premature children.
  • Addressing these knowledge deficits is essential for optimizing the development and well-being of premature children.
  • An integrated approach involving health, education, and social services is vital for comprehensive family support.