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Acceptability of Sharing Internet Browsing History for Cancer Research: Think-Aloud and Interview Study.

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Internet browsing history can aid early disease detection, but privacy and trust are key concerns for participants. Ensuring transparency and control over data sharing is crucial for public acceptance in health research.

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cancerdigital inequalitiesearly diagnosishealth inequalitieshealth-seeking behaviorinternet searchinternet search datasmart dataweb search

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Area of Science:

  • Digital Health
  • Medical Informatics
  • Public Health Surveillance

Background:

  • Internet search behaviors may offer early digital disease signals.
  • Browsing data present opportunities for public health surveillance and early intervention.
  • Acceptability of using sensitive internet data in medical research is unclear, especially for vulnerable groups.

Purpose of the Study:

  • To explore the feasibility and acceptability of using internet browsing history data for health research.
  • To understand participant perspectives on sharing sensitive digital data for medical studies.

Main Methods:

  • Purposive sampling ensured representation from groups at risk of digital and health inequalities.
  • Semistructured and think-aloud interviews were conducted with participants.
  • Thematic analysis of interview transcripts guided by an adapted theoretical framework of acceptability.

Main Results:

  • Trust, transparency, and control were fundamental to participants' willingness to share data.
  • Privacy concerns were prominent, particularly regarding non-health-related or third-party information.
  • Participants recognized potential benefits for early diagnosis but raised concerns about data misuse and digital literacy.

Conclusions:

  • Participant recommendations emphasized balancing privacy with the potential of internet history data for early diagnosis.
  • Ethical and inclusive approaches are vital for health research utilizing internet browsing history.
  • Future research should focus on clear communication, data filters, user-friendly guidance, and building trust with participants.