Remote Monitoring in Adults With Congenital Heart Disease: A Patient Experience Study

Area of Science:

• Cardiology
• Digital Health
• Patient Monitoring

Background:

• Adult congenital heart disease (ACHD) surveillance traditionally relies on outpatient visits.
• Self-monitoring using technology is emerging to alleviate care burdens.
• Wearable devices offer potential for remote patient data collection.

Purpose of the Study:

• To explore the experiences of ACHD patients using wearable technology for self-monitoring.
• To identify factors influencing patient engagement with self-monitoring tools.
• To provide recommendations for optimizing self-monitoring adoption in ACHD.

Main Methods:

• Prospective observational cohort study in the UK.
• Participants used a CardiacSense watch to record vital signs and ECGs.
• Data collected included watch activity, duration of use, and post-monitoring questionnaires.

Main Results:

• 24 ACHD patients completed the study (75% female, median age 44.5).
• Younger age correlated with shorter wear duration; men recorded more ECGs.
• Engagement was affected by comfort, digital literacy, anxiety, and depression.

Conclusions:

• ACHD patients demonstrate good engagement with self-monitoring via wearables.
• Age, comorbidities, and digital literacy significantly impact participation.
• Patient-centered recommendations are crucial for successful self-monitoring implementation.