From Genomes to Conversations: Outreach and Engagement in Psychiatric Genetics

Area of Science:

• Psychiatric Genetics
• Genomic Research Communication
• Public Health

Background:

• Effective outreach in psychiatric genetics is crucial for bridging research, clinical practice, and public understanding.
• Challenges include the complexity of genetic findings, historical misuse of genetic data, and the rise of direct-to-consumer testing.
• The internet and social media exacerbate the spread of misinformation, increasing stigma and shame.

Purpose of the Study:

• To address the gap in psychiatric genetics outreach, where only 51% of researchers participate.
• To develop and implement strategies for better communication of psychiatric genetics research.
• To empower diverse audiences with accurate and actionable information.

Main Methods:

• The Psychiatric Genomics Consortium (PGC) established an Outreach Committee.
• Initiatives include the Worldwide Lab online seminar series (available on YouTube), the PGC Video Textbook, patient/family engagement programs, and social media campaigns.
• These methods aim to demystify complex research for various stakeholders.

Main Results:

• The PGC's Outreach Committee has launched multiple initiatives to enhance communication.
• These programs provide accessible resources for clinicians, researchers, educators, and the public.
• Social media campaigns inform researchers and affected communities about advancements.

Conclusions:

• Psychiatric genetics outreach is vital for disseminating accurate information and combating stigma.
• The PGC's initiatives demonstrate a commitment to engaging broader audiences.
• Engagement should be recognized as a core academic value alongside research and teaching.