Developing a structured framework to explore the experiences of people with dementia and their caregivers regarding...

This paper presents the development of a framework to assess the use and experiences of non-pharmacological interventions (NPIs) supporting sleep, including technological and indoor environmental quality (IEQ) measures. Sleep disturbances are common in people with dementia (PwD) and increase caregiver burden. Pharmacological treatments pose risks, highlighting the need for effective NPIs.

The framework was designed through literature review and expert consensus, and piloted over three weeks with two community-dwelling PwD and one caregiver.

Findings were analyzed to improve the framework on explanation of NPIs, questionnaires, and sleep monitoring. The framework integrates methods to assess user experiences and to monitor sleep and IEQ parameters, due to their impact on sleep.

The final framework, DESMEE-CAP, has demonstrated validity and utility in capturing experiences without disrupting routines. While promising, the small sample size limits generalizability.

Development of a framework, in co-creation, that supports research on the use of non-pharmacological interventions (NPIs) for sleep support for community-living people with dementia and their caregivers. Attention to sleep quality and appropriate support is needed, and insights are provided through the use of the developed framework. Contribution to the development of appropriate, non-pharmacological support for sleep of people with dementia and their caregivers at home.