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Living With Chronic Rhinosinusitis: Insights From an Arts-Based Study.

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  • 1Faculty of Medicine University of British Columbia Vancouver British Columbia Canada.

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PubMed
Summary

Living with chronic rhinosinusitis (CRS) profoundly impacts quality of life (QoL). Arts-based methods and AI reveal complex patient experiences, including emotional tolls and healthcare navigation challenges.

Keywords:
arts‐based methodologychronic rhinosinusitismental healthquality‐of‐life

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Area of Science:

  • Medical Humanities
  • Qualitative Research Methods
  • Artificial Intelligence in Healthcare

Background:

  • Chronic rhinosinusitis (CRS) significantly impairs patient quality of life (QoL).
  • Existing QoL assessments may not fully capture complex patient experiences.
  • Arts-based methods offer novel insights into chronic illness experiences.

Purpose of the Study:

  • To analyze the lived experience of chronic rhinosinusitis (CRS) through patient artwork.
  • To identify common themes and characteristics in artworks created by CRS patients.
  • To explore the multifaceted impact of CRS on patients' daily lives and well-being.

Main Methods:

  • A prospective, qualitative, arts-based study involving 16 adults with CRS.
  • Standardized scales assessed disease severity, depression, and anxiety.
  • Semi-structured interviews and patient drawings were analyzed using ChatGPT-4 and the Common-Sense Model.

Main Results:

  • Six key themes emerged: chronicity, impacts, emotional toll, healthcare navigation, resilience, and complexity.
  • Artwork and interviews revealed a complex emotional landscape shaped by chronic illness.
  • Patients with higher depression/anxiety scores showed more prominent emotional tolls and impacts.
  • CRS patients face significant healthcare navigation challenges compared to asthma patients.

Conclusions:

  • Arts-based research, enhanced by AI, provides deep insights into CRS patient experiences.
  • This methodology effectively captures the nuanced impact of CRS on quality of life.
  • Identifying common themes aids in understanding and addressing patient needs in chronic rhinosinusitis care.