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Living With Chronic Rhinosinusitis: Insights From an Arts-Based Study
Jenny Xiao1, Masih Sarafan1, Julie Zhu1
1Faculty of Medicine University of British Columbia Vancouver British Columbia Canada.
World Journal of Otorhinolaryngology - Head and Neck Surgery
|February 9, 2026
Summary
Living with chronic rhinosinusitis (CRS) profoundly impacts quality of life (QoL). Arts-based methods and AI reveal complex patient experiences, including emotional tolls and healthcare navigation challenges.
Area of Science:
- Medical Humanities
- Qualitative Research Methods
- Artificial Intelligence in Healthcare
Background:
- Chronic rhinosinusitis (CRS) significantly impairs patient quality of life (QoL).
- Existing QoL assessments may not fully capture complex patient experiences.
- Arts-based methods offer novel insights into chronic illness experiences.
Purpose of the Study:
- To analyze the lived experience of chronic rhinosinusitis (CRS) through patient artwork.
- To identify common themes and characteristics in artworks created by CRS patients.
- To explore the multifaceted impact of CRS on patients' daily lives and well-being.
Main Methods:
- A prospective, qualitative, arts-based study involving 16 adults with CRS.
- Standardized scales assessed disease severity, depression, and anxiety.
- Semi-structured interviews and patient drawings were analyzed using ChatGPT-4 and the Common-Sense Model.
Main Results:
- Six key themes emerged: chronicity, impacts, emotional toll, healthcare navigation, resilience, and complexity.
- Artwork and interviews revealed a complex emotional landscape shaped by chronic illness.
- Patients with higher depression/anxiety scores showed more prominent emotional tolls and impacts.
- CRS patients face significant healthcare navigation challenges compared to asthma patients.
Conclusions:
- Arts-based research, enhanced by AI, provides deep insights into CRS patient experiences.
- This methodology effectively captures the nuanced impact of CRS on quality of life.
- Identifying common themes aids in understanding and addressing patient needs in chronic rhinosinusitis care.
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