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Improving healthcare transitions for neurodevelopmental disabilities: Statewide learning collaborative outcomes
Susan Shanske1, Abigail Ross2,3, Sarah Spence4
1BRIDGES Adult Transition Program, Boston Children's Hospital, USA.
Health Care Transitions
|February 9, 2026
Summary
A learning collaborative improved healthcare transition for individuals with neurodevelopmental disabilities (NDD). This model facilitated patient movement to adult care, showing promise for advancing transition practices.
Area of Science:
- Healthcare transition
- Neurodevelopmental disabilities
- Quality improvement collaboratives
Background:
- Individuals with neurodevelopmental disabilities (NDD) face significant challenges transitioning from pediatric to adult healthcare.
- Effective healthcare transition (HCT) strategies are crucial for this population.
Purpose of the Study:
- To evaluate a statewide learning collaborative designed to improve pediatric-to-adult HCT for individuals with NDD.
- To assess the feasibility, engagement, and outcomes of the collaborative model.
Main Methods:
- A two-phase statewide learning collaborative involving pediatric and adult practice teams and family partners.
- Utilized the Model for Improvement and Six Core Elements of GotTransition.
- Incorporated monthly meetings, learning sessions, plan-do-study-act (PDSA) cycles, and a transition-tracking registry.
Main Results:
- High participant satisfaction (mean ratings >4.1/5) and positive summit evaluations.
- Teams integrated registry elements into workflows, showing modest improvements in transition practices.
- 49 patients were reported transferred or in process by phase two, though challenges in tracking and adult integration persisted.
Conclusions:
- A structured, statewide learning collaborative is a feasible and engaging model for advancing healthcare transition for individuals with NDD.
- Key success factors include leadership support, dedicated resources, flexibility, and addressing adult system shortcomings.
- This collaborative approach can improve care transitions for patients with NDD.
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