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Updated: Jun 19, 2026
09:38
Quantitative Assessment of Cortical Auditory-tactile Processing in Children with Disabilities
Published on: January 29, 2014
Parents' Perceptions of Delays and Disabilities in Their Children Requiring Invasive Mechanical Ventilation
Amanda Calipo1, Emma L Green2, Iris Huang1,3
1The University of Chicago Pritzker School of Medicine, Chicago, Illinois, USA.
Pediatric Pulmonology
|February 9, 2026
Summary
Parents of children needing invasive mechanical ventilation (IMV) want clear information on developmental outcomes. They can identify delays but often expect catch-up, highlighting a need for better provider communication about disability risks.
Area of Science:
- Pediatric critical care
- Neurodevelopmental disabilities
- Parental perceptions
Background:
- Children requiring invasive mechanical ventilation (IMV) face significant risks for developmental delays and disabilities.
- Understanding parental perspectives is crucial for providing comprehensive support.
Purpose of the Study:
- To assess parents' perceptions of their children's developmental delays and disabilities.
- To explore parents' understanding of disability risks and prior communication with healthcare providers.
Main Methods:
- Interviews were conducted with 35 parents of children under 3 years old who required IMV.
- Interview topics included perceived child development, understanding of disability risks, and prior provider conversations.
- Data were analyzed using a modified template approach with iterative theme determination.
Main Results:
- Parents desired more information on developmental outcomes but reported limited conversations with providers, leading to unclear expectations.
- Parents identified specific developmental milestones and delays but often expected children to "catch up."
- While aware of overall disability, parents frequently lacked direct access to neurodevelopmental expertise.
Conclusions:
- Parents value honest communication regarding their child's disability risks.
- There is a critical need to enhance communication between healthcare providers and parents about potential developmental challenges.
- Improved dialogue can better support children requiring IMV and their families.
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Critical Guidelines for Assessing Ventilation:
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Critical Guidelines for Assessing Ventilation:
01:29Assessment of Ventilation II: Respiratory Depth and Rhythm
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To assess respiratory depth, observe the degree of chest excursion or movement:
Respiratory depth measures the volume of air inhaled or exhaled during a breath. It can vary from shallow to deep and typically remains consistent when a person is at rest or asleep. Occasionally, individuals will automatically inhale deeply, known as sighing, which inflates the lungs with more air than normal breathing.
To assess respiratory depth, observe the degree of chest excursion or movement:
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