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Integrating Symptom Screening in Pediatrics Into the Epic Electronic Health Record: Development and Acceptability for

Adam P Yan1,2,3, Emily Saso3, Julia Shannon3

  • 1Division of Haematology/Oncology, The Hospital for Sick Children, Toronto, ON, Canada.

JCO Clinical Cancer Informatics
|February 12, 2026
PubMed

Insights

Routine symptom screening for pediatric cancer patients is crucial. Integrating the Symptom Screening in Pediatrics (SSPedi) tool into the Epic EHR showed usability challenges, especially without reminders, highlighting the need for training.

Area of Science:

  • Pediatric Oncology
  • Health Informatics
  • Patient Reported Outcomes

Background:

  • Routine symptom screening is increasingly recommended for pediatric oncology patients.
  • The Symptom Screening in Pediatrics (SSPedi) is a validated patient-reported outcome tool.

Purpose of the Study:

  • To develop and evaluate the usability of the SSPedi tool integrated into the Epic electronic health record (EHR).
  • To assess the feasibility of using SSPedi within a real-world clinical workflow.

Main Methods:

  • SSPedi was developed within Epic's MyChart patient portal for self-report and proxy-report.
  • 30 pediatric oncology patients (ages 2-18) or their guardians participated in three cohorts.
  • Usability was evaluated through task completion rates and participant self-reported ease of use, with iterative modifications.

Main Results:

  • 60% of participants could find SSPedi on a scheduled day; 33% found it unscheduled.
  • 70% could complete SSPedi once found, but only 33% could view trends.
  • Initial usability was rated easy/very easy by 67%, improving to 100% in the final cohort.

Conclusions:

  • SSPedi can be successfully integrated into the Epic EHR for scheduled use.
  • Challenges remain in unscheduled access and viewing historical data, indicating a need for user training.
  • Implementation requires comprehensive patient and guardian training and support for optimal utilization.
Abstract

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