School needs of children with chronic illnesses: A phenomenological study in Turkiye

This study explores the experiences of school-age children with chronic illnesses in Türkiye.

The sample consisted of 27 students aged 8-14 in Türkiye: nine with type 1 diabetes, eight with asthma, eight with allergies, and two with epilepsy. Data were collected through semi-structured interviews using a form developed by the researcher and analyzed via Interpretative Phenomenological Analysis.

The analysis revealed six categories: (1) school, (2) psychosocial factors, (3) friends, (4) teachers, (5) family, and (6) information and support resources.

Students reported the need for supportive relationships and open communication for illness management. Concerns about school absenteeism during the diagnosis and treatment periods were common, with a call for greater tolerance from school personnel. Worries about the future-especially regarding careers-were frequently expressed. Some participants experienced peer bullying and expected counselor intervention, yet most had not received support due to a lack of counselor awareness. Mothers were typically identified as the main caregivers, and children expressed both gratitude and guilt.

Action plans involving all stakeholders should be developed for the management of chronic illnesses in schools, and school counseling services should be made more inclusive in order to provide psychosocial support to children.